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Be sure to visit our Photo
Gallery to view a wide variety of pictures taken of those members who attended our Little
Hearts annual picnic. Underneath each photo is their first name, their diagnosis, and the year they were born. The Gallery includes a musical slide show that
allows you to cherish each image of hope.
Our 2009 Heart Kid Video is now online! Enjoy! (Visit our 2008 Heart Kid Video.)
To see the photo of kids with HLHS who attended the picnic - also referred to as Little Hearts Picture of HOPE/HLHS 2008 - scroll down to the bottom of the page. You'll see a photo of 44 kids ranging in age from a few months old to 21 years of age.
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Picture of HOPE/CHD 2009
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Above
photo
includes
127
"kids" with
CHD who attended
our 13th
annual picnic.
Breakdown
by
diagnosis
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ALCAPA - 1
Aortic Stenosis (AS) - 1
Atrial Septal Defect (ASD) - 1
Atrioventricular Canal Defect (AVCD) - 3
Cardiomyopathy - 2
Coarctation of the Aorta (COA) - 6
Complete Heart Block - 3
Double Inlet Left Ventricle (DILV) - 2
Double Outlet Right Ventricle (DORV) - 9
Ebstein's Anomaly - 1
HLHS - 44
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Pulmonary Atresia (PA) - 5
Shone's Syndrome - 1
Single Ventricle - 1
Sinus Venosus - 1
Tetralogy of Fallot (TOF) - 15
Transposition Great Arteries - 13
Tricuspid Atresia (TA) - 8
Tricuspid Stenosis -1
Truncus - 2
Ventricular Septal Defect (VSD) - 6
WPW - 1
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Here are the heart "kids" who attended our 13th annual picnic. The year they were born is listed first followed by their first name and the diagnosis they were born with. Visit our 2009 slideshow to see a photo of each heart child! |
Many thanks to
Half Circle of www.fullcirclerocks.net
for music
www.pemdesign.com
www.psolka-photo.com
for their photos!
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1965 - Bill - Tricuspid Atresia
1966 - Michael - ASD
1988 - Kenneth - HLHS
1990 - Jon - TGA
1990 - Alex - HLHS
1990 - Ben - HLHS
1990 - Sarah - HLHS
1991 - Josie - HLHS
1991 - Adam - HLHS
1992 - Ashley - HLHS
1992 - Tara - HLHS
1993 - Alex - HLHS
1996 - Jeffrey - HLHS
1996 - Adam - TOF, PS
1996 - Andrew - TOF
1997 - Joey - HLHS
1997 - Matthew - HLHS
1997 - Timothy - HLHS
1997 - Jackie - PS, L-TGA
1998 - Logan - COA, MVS
1998 - Jacob - HLHS
1998 - Zachary - DORV
1998 - Leah - AS, COA, ASD
1998 - Ben - HLHS
1999 - Quinn - HLHS
1999 - Jacob - HLHS, TAPVR
1999 - Christopher - HLHS
1999 - Tyler - TGA
1999 - Nicholas - HLHS
1999 - Mollie - TGA
1999 - Pablo - TGA, VSD, PS
1999 - Brandon - HLHS
2000 - Adam - HLHS
2000 - Russell - HLHS
2000 - Giuliana - VSD, ASD
2000 - Zachary - TGA, VSDs
2000 - Amelia - PA, VSD
2001 - Timothy - HLHS
2001 - Claire - TOF, PS
2001 - David - HLHS
2001 - Nicholas - Sinus Venosus
2001 - Cameron - TA
2001 - Ashley - CHB
2001 - Christopher - DORV
2001 - Daena - HLHS
2001 - Adam - DORV, MA
2001 - Devyn - HLHS
2001 - Kelly - HLHS
2001 - Jennifer - Tricuspid Atresia
2002 - Andrew - COA
2002 - Tyler - TOF
2002 - Julia - TOF, PA
2002 - Isabella - HLHS
2002 - Casey - HLHS
2002 - Anthony - DILV
2002 - Kira- DORV
2003 - Daniel - HLHS
2003 - Jillian - L-TGA, PA
2003 - Daniel - DORV
2003 - Anthony - TOF, PA
2003 - David - TOF, PA
2004 - Ewan - Tricuspid Atresia
2004 - Lilliana - VSD
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2004 - Noah - HLHS
2004 - David - TOF, PA
2004 - Olivia - PA, PS
2004 - Pietro - PA
2004 - Megan - HLHS
2004 - Lily - Tricuspid Atresia
2004 - Janey - TOF, PA
2004 - Harrison, TOF
2004 - Andrew - HLHS
2004 - Zachary - Shone's
2005 - Dale - TGA
2005 - Savannah - DORV
2005 - Benjamin - AVCD
2005 - Noelle - Single Ventricle
2005 - Akshaj - TGA, VSD
2005 - Addison - TOF
2005 - Cora - HLHS
2005 - Delaney- COA, VSDs
2005 - Faith - DILV, VSD
2005 - Geovanni - DORV
2005 - Brendan - VSD, L-TGA
2005 - Audrey - PA, VSD, ASD
2005 - Maggie - HLHS
2005 - Patrick - Tricuspid Atresia
2005 - Antonio - HLHS
2005 - Will - WPW, MV Regurg
2005 - Andrew - TGA, COA
2006 - Melissa - TGA
2006 - Aoife - Truncus
2006 - Skylar - COA, VSDs
2006 - Katherine - HLHS
2006 - Jack - HLHS
2006 - Heart Child - AVCD
2006 - Greta - HLHS
2006 - Seth - DORV, VSD
2006 - Charlie - VSD
2006 - Artur - COA, AS
2006 - Kailyn - HLHS
2006 - Jared - TGA
2006 - Owen - HLHS
2006 - Lillian - COA, AS
2006 - Samantha - TOF, PA
2007 - Matthew - TOF, PA
2007 - Christian - TOF
2007 - Micah - ALCAPA
2007 - Eva - HLHS
2007 - Ava - Tricuspid Stenosis, PS
2007 - John - Ebstein's Anomaly
2007 - Penelope - TOF, PA
2007 - Jillian - Cardiomyopathy
2008 - Maeve - AVCD, VSD
2008 - Jackson - VSD, ASD, IAA
2008 - Elise - Complete Heart Block
2008 - Lily Rose - TOF
2008 -Andrew - TGA
2008 - Isaac - HLHS
2008 - Caitlin - Cardiomyopathy
2008 - Faith - HLHS
2008 - Tyler - TGA, ASD
2008 - Abigail - DORV, VSD
2008 - Dominic - Tricuspid Atresia
2009 - Tarynn - Truncus
2009 - Kirsten - TOF
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Picture of HOPE/HLHS 2009
44 kids born with HLHS - here they are by
their date of birth:
1988 - Kenneth
1990 - Alex, Ben, Sarah
1991 - Adam, Josie
1992 - Ashley, Tara
1993 - Alex
1996 - Jeffrey
1997 - Joey, Matthew, Timothy
1998 - Ben, Jacob
1999 - Brandon, Christopher, Jacob, Nicholas, Quinn
2000 - Adam, Russell
2001 - Daena, David, Devyn, Kelly, Timothy
2002 - Casey, Isabella
2003 - Daniel
2004 - Andrew, Megan, Noah
2005 - Antonio, Cora, Maggie
2006 - Greta, Jack, Kailyn, Katherine, Owen
2007 - Eva
2008 - Faith, Isaac
Here are just a few that could be in Little Hearts Picture of HOPE/HLHS 2008. Just in our organization alone, we have 475 HLHS survivors as of June 1st.
If you're looking for current HLHS statistics, please contact a children's hospital that performs the Norwood (stage 1) and ask how many they do in a calendar year. (For example, CHOP, Boston, MCHC do about 60 Norwoods a year). Hospitals don't put their stats on their site because they are misleading as they need to be "risk adjusted". Results for an 8 pound baby will be different than in a 4 1/2 pound baby. So, be careful of the information you find online. We don't recommend you search the internet for this information.
These photos are dedicated to the brilliant cardiothoracic surgeons and supportive pediatric cardiologists who've made it possible for our children to have a second chance at life. Some have had a rougher road than others but it has all been worth it. Many thanks to you all.
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