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More than 100 families from 15 states - as far away as Texas - joined us for the 14th Annual Little Hearts Picnic. The oldest heart "child" in attendance this year is 52 years old!
Be sure to check out our videos from the 14th annual picnic. For the last two years, we interviewed heart kids for the video - but this time around, we spoke with their parents as well. Click on the links below to hear what the Little Hearts picnic means to the entire family.
2010 Heart Kid and Parent Video
2009 Heart Kid Video
2008 Heart Kid Video
And while you're here, visit our photo slideshows of the 2010 picnic and picnics past, as well as our Inaugural Golf Tournament.
Bill, born 1965 with Tricuspid Atresia, is a professional photographer and takes our Pictures of HOPE annually!
To see our Picture of HOPE/HLHS 2010, scroll down to the bottom of this page. Pictured here are 44 kids born with HLHS - the oldest being 25 years old.
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Picture of HOPE/CHD 2010 |
Above
photo
includes
108
"kids" with
CHD who attended
our 14th
annual picnic.
Breakdown
by
diagnosis
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Aortic Stenosis (AS) - 4
Atrial Septal Defect (ASD) - 4
Atrioventricular Canal Defect (AVCD) - 2
Coarctation of the Aorta (COA) - 1
Complete Heart Block - 1
Double Inlet Left Ventricle (DILV) - 4
Double Outlet Right Ventricle (DORV) - 6
Ebstein's Anomaly - 1
HLHS - 44
Mitral Valve Stenosis - 1
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Pulmonary Atresia (PA) - 4
Pulmonary Stenosis (PS) - 1
Shone's Syndrome - 1
Sinus Venosus - 1
TAPVR - 1
Tetralogy of Fallot (TOF) - 10
Transposition Great Arteries - 8
Tricuspid Atresia (TA) - 8
Tricuspid Stenosis -2
Truncus Arteriosus - 3
Ventricular Septal Defect (VSD) - 2
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Here are the heart "kids" who attended our 14th annual picnic. The year they were born is listed first followed by their first name and the diagnosis they were born with. |
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www.psolka-photo.com
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1957 - Tony - TOF
1958 - David - ASD, Cleft Valve
1960 - Kimberly - DILV, PS
1965 - Bill - Tricuspid Atresia
1966 - Michael - ASD
1984 - Megan - Tricuspid Atresia
1988 - Kenneth - HLHS
1990 - Jon - TGA
1990 - Alex - HLHS
1990 - Ben - HLHS
1991 - Josie - HLHS
1992 - Ashley - HLHS
1992 - Tara - HLHS
1993 - Alex - HLHS
1996 - Jeffrey - HLHS
1997 - Joey - HLHS
1997 - Matthew - HLHS
1997 - Timothy - HLHS
1997 - Matthew - HLHS
1998 - Logan - COA, MVS
1998 - Jacob - HLHS
1998 - Leah - AS, COA, ASD
1999 - Quinn - HLHS
1999 - Jacob - HLHS, TAPVR
1999 - Christopher - HLHS
1999 - Nicholas - HLHS
2000 - Adam - HLHS
2000 - Russell - HLHS
2000 - Zachary - TGA, VSDs
2000 - Amelia - PA, VSD
2001 - Timothy - HLHS
2001 - David - HLHS
2001 - Nicholas - Sinus Venosus
2001 - Cameron - Tricusid Atresia
2001 - Christopher - DORV
2001 - Daena - HLHS
2001 - Adam - DORV, MA
2001 - Kelly - HLHS
2001 - Jennifer - Tricuspid Atresia
2002 - Edgar - HLHS
2002 - Tyler - Tricuspid Atresia
2002 - Mason - Tricuspid Atresia
2002 - Isabella - HLHS
2002 - Anthony - DILV
2002 - Bryna - TOF
2002 - Ariana - HLHS
2002 - Kira- DORV
2003 - Alec - HLHS
2003 - Daniel - HLHS
2003 - Emily - ASD, VSD
2003 - Wyatt - HLHS
2003 - Jillian - L-TGA, PA
2003 - Kaylee - L-TGA, ASD
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2003 - Anthony - TOF, PA
2003 - Hunter - HLHS
2003 - Gabriella - ASD
2003 - Alex - HLHS
2004 - Ewan - Tricuspid Atresia
2004 - Lilliana - VSD
2004 - David - TOF, PA
2004 - Ainsley - TGA
2004 - Megan - HLHS
2004 - Madison - AS, VSD
2004 - Janey - TOF, PA
2004 - Andrew - HLHS
2004 - Zachary - Shone's
2004 - Keegan - CHB
2005 - Angelica - VSD
2005 - Cameron - HLHS
2005 - Dale - TGA
2005 - Savannah - DORV
2005 - Benjamin - AVCD
2005 - Daniel - TOF, PA
2005 - Ellie - AVCD, unbalanced
2005 - Faith - DILV, VSD
2005 - Nathan - DORV
2005 - Cole - HLHS
2005 - Audrey - PA, VSD, ASD
2005 - Maggie - HLHS
2005 - Michael - Pulmonary Atresia
2006 - Marisa - Ebstein's Anomaly
2006 - Melissa - TGA
2006 - Aoife - Truncus
2006 - Ella - HLHS
2006 - Jack - HLHS
2006 - Greta - HLHS
2006 - Samantha - TGA
2007 - Aidan - HLHS
2007 - Ava - Tricuspid Stenosis, PS
2007 - Devon - PS, critical
2007 - Riley - MVS
2008 - Ayden - HLHS
2008 - Tony - TOF
2008 - Lily Rose - TOF
2008 - Matthew - DORV, PS
2008 - Dorian - TOF
2008 - Faith
2009 - Tarynn - Truncus Arteriosus
2009 - Kirsten - TOF
2009 - Brandon - Aortic Stenosis
2009 - Samuel - HLHS, AA, MS
2009 - Sophie - TAPVR
2009 - Ari Isaac - AS, critical
2009 - HLHS, AA
2009 - Alexa - Truncus Arteriosus
2010 - Baby Due July - TA
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Picture of HOPE/HLHS 2010
44 kids born with HLHS - here they are by
their date of birth:
1985 - Taryn
1988 - Kenneth
1990 - Alex, Ben
1991 - Josie
1992 - Ashley, Tara
1993 - Alex
1996 - Jeffrey
1997 - Joey, Matthew J, Matthew M, Timothy
1998 - Jacob
1999 - Christopher, Jacob, Nicholas, Quinn
2000 - Adam, Russell
2001 - Daena, David, Kelly, Timothy
2002 - Ariana, Casey, Edgar, Isabella
2003 - Alec, Daniel, Hunter, Wyatt
2004 - Andrew, Megan
2005 -Cameron, Cole, Maggie
2006 - Blake, Ella, Jack
2007 - Aidan
2008 - Ayden, Cora, Faith, Sam
Here are just a few that could be in Little Hearts Picture of HOPE/HLHS 2010. Just in our organization alone, we have over 550 HLHS survivors.
If you're looking for current HLHS statistics, please contact a children's hospital that performs the Norwood (stage 1) and ask how many they do in a calendar year. (For example, CHOP, Boston, MCHC do about 60 Norwoods a year). Hospitals don't put their stats on their site because they are misleading as they need to be "risk adjusted". Results for an 8 pound baby will be different than in a 4 1/2 pound baby. So, be careful of the information you find online. We don't recommend you search the internet for this information.
These photos are dedicated to the brilliant cardiothoracic surgeons and supportive pediatric cardiologists who've made it possible for our children to have a second chance at life. Some have had a rougher road than others but it has all been worth it. Many thanks to you all.
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