Little Hearts was founded in 1998 by Lenore Cameron after her second son, Jeffrey, was born with HLHS. As a result of her experience and looking to connect with other parents who had children with the same heart defect as her son, Little Hearts was born. Today, Jeffrey is a High School graduate and attends Goodwin College. His story can be read by visiting the Stories of Hope page of our website. Amazing how one little baby's start in life helps thousands of families a day.
How does Little Hearts support services help families? Here's what one member had to say:
"My son was diagnosed less than 24 hours after birth with Pulmonary Atresia w/ IVS. My world was rocked to the core. I had such a wonderful pregnancy and was so excited to meet this new little person. After getting through his first surgery and attempting to settle in at home (without the familiar blips on the hospital screen that told me all the important vitals were functioning well)...I started to worry, ALOT. Then as I was going through all the hospital paperwork, I focused a little more on the Little Hearts brochure that was part of our "Welcome to this Heart World" packet. I logged in and devoured everything on the site and read through pages of other parents' discussions and what they were going through. Suddenly, we weren't so alone. There were other people who understood. We had friends and family surrounding us and who were there to care about this new little bundle, but it was hard for them to fully grasp what we were going through. How scared we were for this little man's future. What would it bring? Was it normal to feel the way we did? And it was all right there on this site....families just starting on this journey, just like we were, families with more on their plate to deal with, an understanding that only a "been there, done that momma" could convey....and "normal"....well that's all relative anyways...I will always be thankful for Little Hearts and for Lenore, who through her own journey chose to share hope to so many others!"
Board of Directors:
Lenore M. Cameron
Medical Advisory Board:
Frederick Bierman, MD