Little Hearts

About Us

Little Hearts was founded in 1998 by Lenore Cameron after her second son, Jeffrey, was born with HLHS.  As a result of her experience and looking to connect with other parents who had children with the same heart defect as her son, Little Hearts was born.  Today, Jeffrey is a High School graduate and attends Goodwin College.  His story can be read by visiting the Stories of Hope page of our website.  Amazing how one little baby's start in life helps thousands of families a day.

How does Little Hearts support services help families?  Here's what one member had to say: 

''Dear Lenore,

Just wanted to share my thoughts about life and what the 2013 picnic made me aware of.

#1- Nothing in life is by coincidence.

#2-Our CHD is in a way a "Blessing of a special kind"...as children we are told that we were very sick babies, that we were blue and that we had surgery at a very young age. As we go thru our teenage years we might endure another surgery or 2...we are bitter sometimes, and we wonder what our future will be like...then we begin to get gray hair like me!...Wow we say, I am are getting old....maybe I should do something to help others with a CHD understand that we can do anything, we just have to do it differently.

In 2010 I went to my 1st "Little Hearts" picnic. I never imagined that 1 year later (in 2011) I would be speaking to a family from Kansas about the CHD that both their son and I shared. We talked that day for hours, I promised that as I drove my rig thru Kansas I would stop and give their son a ride...well I did just that, and that night I met the family for dinner. They told me they weren't happy with their Doctor and I told them they should take a drive to the Mayo clinic in MN.

Taking my advice a few months later, the doctors at Mayo told them that their son needed surgery to replace the Pulmonary Valve; this was something that the doctors in Kansas didnít offer them.

Today, 2 years after we met at the "little Hearts" picnic, this young man is getting ready for his Pulmonary valve replacement on August 1st and I am getting ready to be by his bedside when this takes place....Coincidence?....I don't think so, more like... meant to be!

Thanks so much Lenore for bringing families of CHD children together...."YOU" are definitely "NOT" doing this by "COINCIDENCE"!!!!

Best Wishes,

Tony (TOF) survivor and blessed to know how precious life is."

Here's what another member had to say:

"My son was diagnosed less than 24 hours after birth with Pulmonary Atresia w/ IVS.  My world was rocked to the core.  I had such a wonderful pregnancy and was so excited to meet this new little person.  After getting through his first surgery and attempting to settle in at home (without the familiar blips on the hospital screen that told me all the important vitals were functioning well)...I started to worry, ALOT.  Then as I was going through all the hospital paperwork, I focused a little more on the Little Hearts brochure that was part of our "Welcome to this Heart World" packet.  I logged in and devoured everything on the site and read through pages of other parents' discussions and what they were going through.  Suddenly, we weren't so alone.  There were other people who understood.  We had friends and family surrounding us and who were there to care about this new little bundle, but it was hard for them to fully grasp what we were going through.  How scared we were for this little man's future.  What would it bring?  Was it normal to feel the way we did?  And it was all right there on this site....families just starting on this journey, just like we were, families with more on their plate to deal with, an understanding that only a "been there, done that momma" could convey....and "normal"....well that's all relative anyways...I will always be thankful for Little Hearts and for Lenore, who through her own journey chose to share hope to so many others!"

 What better way to explain how we help "CHD families" than from hearing from members themselves.

Board of Directors:

Lenore M. Cameron
Tim Cameron
Thomas Reilly

Medical Advisory Board:

Frederick Bierman, MD
Rozelle Corda, FNP
Michael D. Freed, MD
Michael Gewitz, MD
Felice Heller, MD
Richard A. Jonas, MD
Terri Saia, PNP
Darshak Sanghavi, MD
Michael Snyder, MD
Gil Wernovsky, MD

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Have a baby that is newly diagnosed with a CHD? Read our stories of HOPE from other people just like you.

Little Hearts, Inc.

P.O. Box 171, Cromwell, CT 06416
Phone/Fax (860) 635.0006  Toll Free 866.435.Hope
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