Picture of Hope - HLHS
Picture of HOPE 2010
44 kids born with HLHSHere they are by date of birth:
1985 - Taryn
1988 - Kenneth
1990 - Alex, Ben
1991 - Josie
1992 - Ashley, Tara
1993 - Alex
1996 - Jeffrey
1997 - Joey, Matthew J, Matthew M, Timothy1998 - Jacob
1999 - Christopher, Jacob, Nicholas, Quinn
2000 - Adam, Russell
2001 - Daena, David, Kelly, Timothy
2002 - Ariana, Casey, Edgar, Isabella
2003 - Alec, Daniel, Hunter, Wyatt
2004 - Andrew, Megan
2005 -Cameron, Cole, Maggie
2006 - Blake, Ella, Jack
2007 - Aidan
2008 - Ayden, Cora, Faith, Sam
Here are just a few that could be in Little Hearts Picture of HOPE/HLHS 2010. Just in our organization alone, we have over 550 HLHS survivors.
If you're looking for current HLHS statistics, please contact a children's hospital that performs the Norwood (stage 1) and ask how many they do in a calendar year. (For example, CHOP, Boston, MCHC do about 60 Norwoods a year). Hospitals don't put their stats on their site because they are misleading as they need to be "risk adjusted". Results for an 8 pound baby will be different than in a 4 1/2 pound baby. So, be careful of the information you find online. We don't recommend you search the internet for this information.
These photos are dedicated to the brilliant cardiothoracic surgeons and supportive pediatric cardiologists who've made it possible for our children to have a second chance at life. Some have had a rougher road than others but it has all been worth it. Many thanks to you all.
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