Little Hearts

News/Events

Stay up to date on CHD Awareness articles, CHD research projects, Pulse Ox and teen screening and more by visiting the News link.  If you're interested in participating in our annual fundraiser, picnic and photo calendar, please visit the Events link.

Alerts

Washington Mom Sues Over Daughter’s Heart Defect 
Tuesday, March 26, 2013
Wellbutrin Linked to Serious Heart Problems  
Thursday, April 21, 2011
"Researchers found that more than 12,700 infants born from 1997 to 2004 in the United States whose mothers were taking Wellbutrin during the pregnancy, had more than double the risk of a heart defect known as left outflow defects."

Awareness

NY 12-Year old member brings awareness to CHD 
Thursday, February 27, 2014
"Jennifer Reilly is an honor student who, in addition to figure skating, likes to play the piano. She doesn’t let her congenital heart defect slow her down. “I like science,” she told Adams. “I want to be a doctor.”
Awareness article with Dr. Naomi Gauthier 
Monday, February 03, 2014
"Now, every baby who needs a repair has one, and they are growing up and doing wonderfully," Gauthier said. "We follow them and it's an amazing tale of optimism."
Member and their race car in local ABC News 
Monday, May 27, 2013
Check out the race car in the video! One Little Hearts member brings awareness while racing!

CHD Survivor News

Ten year old CHD Survivor Little League All-Star baseball Star 
Thursday, July 18, 2013
5 Questions: Robby Benson shares lessons from heart surgeries 
Saturday, October 27, 2012
CHD survivor actor Robby Benson sharies his lessons from open heart surgeries.
Family share son with Shone's Syndrome story 
Tuesday, October 02, 2012
"He almost died when he was 3 weeks old and started experiencing severe symptoms related to a congenital heart defect, Shone's syndrome."

Features

American College of Cardiology’s 63rd Annual Scientific Session and Expo 
Saturday, March 29, 2014
"Today at the American College of Cardiology’s 63rd Annual Scientific Session and Expo, the University of Virginia School of Medicine and ArcheMedX are unveiling an innovative online program designed to improve detection, diagnosis, and management strategies in Fetal Cardiology."
Cardiology 2014 Conference Press Release  
Thursday, February 27, 2014
"An international group of more than 1000 medical experts gathered at the nation’s largest pediatric cardiology conference from Feb. 19-23 to discuss the latest innovations in detection and treatment of congenital heart disease in babies, children and young adults."
Little Hearts member's story in BCH blog 
Wednesday, February 26, 2014

Research

First Trimester biomarkers screen for CHDs 
Wednesday, April 09, 2014
"This study found that first trimester maternal serum metabolites can be used to predict risk of fetal congenital heart defects (CHD)."
The Hospital for Sick Children researchers offer insight into the cause of AVSDs 
Friday, April 04, 2014
"The study, published in the April 3 online edition of The American Journal of Human Genetics, is the first in Canada to use large-scale whole-exome sequencing in children born with heart disease and is also the first to demonstrate this gene’s role in human heart disease."
Melody TPV 1-year results show positive clinical outcomes 
Sunday, March 30, 2014
"U.S. Post-Approval Study, which found that real-world use of the Melody TPV was associated with high procedural success, excellent valve function and few repeat procedures at the primary endpoint of six months. These results were sustained out to one year."

Screening

Recent Newborn Screening Study published in JAMA Pediatrics 
Friday, March 07, 2014
Dr. Tatum talks about Fetal Echocardiograms 
Friday, January 24, 2014
"Fetal echocardiograms are most commonly recommended for individuals who fall into the high risk category."
Missouri to begin newborn CHD screening 
Thursday, December 19, 2013

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