Stories of HopeAre you expecting or have a baby that has been newly diagnosed with a congenital heart defect? Here are hundreds of stories of hope submitted by some of our members we'd like to share with you. It is our intention that they offer hope, inspiration and support to those who read them.
We have over 4,000 members nationwide who have a child with a congenital heart defect. Of those, we have over 400 that have shared their story for our website. So, if you see only a few stories for the heart defect you're looking for, it's only because not everyone shares their story.
Check out our Membership by Diagnosis Year 2018 page. The Stories of Hope below are just a few shared by members.
If you read a story and would like to connect with that member, just contact us. To learn more about our Parent Matching Program, please visit our our website. If you are a member and would like to submit your submit, complete our online Story of Hope submission form. You are not alone and we have Hope to share with you.
Aortic Stenosis - AS (13)
Atrial Septal Defect - ASD (7)
Atrioventricular Canal Defect - AVCD (8)
Atrioventricular Septal Defect - AVSD
Coarctation of the Aorta - COA (22)
Coronary Artery between PA and Aorta
Discontinuous Pulmonary Artery
Double Chambered Right Ventricle - DCRV
Double Inlet Left Ventricle - DILV (5)
Double Outlet Right Ventricle - DORV (18)
Heart Block (4)
Hypoplastic Left Heart Syndrome - HLHS (87)
Hypoplastic Left Heart Syndrome, Intact Atrial Septum
Hypoplastic Left Heart Syndrome, TAPVR
Interrupted Aortic Arch (IAA)
Long QT Syndrome
Mitral Stenosis - MS (2)
Partial Anomalous Pulmonary Vein Return - PAPVR (2)
Pulmonary Atresia - PA (8)
Pulmonary Atresia with IVS (8)
Pulmonary Stenosis - PS (5)
Tetralogy of Fallot - TOF (39)
Tetralogy of Fallot, PA (13)
Total Anomalous Pulmonary Venous Return - TAPVR (9)
Transposition of the Great Arteries - TGA (33)
Tricuspid Atresia (9)
Truncus Arteriosus (12)
Ventricular Septal Defect - VSD (14)