Little Hearts

Stories of Hope

Are you expecting or have a baby that has been newly diagnosed with a congenital heart defect? Here are hundreds of stories of hope submitted by some of our members we'd like to share with you.  It is our intention that they offer hope, inspiration and support to those who read them.

We have over 4,000 members nationwide who have a child with a congenital heart defect.  Of those, we have over 400 that have shared their story for our website.  So, if you see only a few stories for the heart defect you're looking for, it's only because not everyone shares their story. 

Check out our Membership by Diagnosis Year 2015 page.  The Stories of Hope below are just a few shared by members. 

If you read a story and would like to connect with that member, just contact us. To learn more about our Parent Matching Program, please visit our our website.  If you are a member and would like to submit your submit, complete our online Story of Hope submission form.  You are not alone and we have Hope to share with you.


ALCAPA

Alexis, born 2014 
Hannah, born 2012  
Jazlynn, born 2015 
Jerry, born 2008 
River, born 2016 
Tiernyn - 2005 

Aortic Stenosis - AS (13)

Anders, born 2010  
Ari - born 2009 
Brandon - born 1995 
Brandon - born 2009 
Brenden - born 2004 
Brittany, born 2009 
Carly, born 1993 
Devon - born 2004 
Dominic, born 2012 
Elizabeth - born 2009 
Ria, born 2012  
Tracker, born 2009 
Zion, born 2012 

Atrial Septal Defect - ASD (7)

Ava, born 2015 
Elizabeth, born 2003 
Gabriella, born 2003 
Gianmarco, born 2010 
Heidi, born 2010 
Jan, born 1968 
Justin, born 1999 

Atrioventricular Canal Defect - AVCD (8)

Ayden, born 2011 
Connor, born 2014 
Gabriel, born 2003 
Gianna, born 2001 
Jackson, born 2010 
Lydia, born 2010  
Madeline, born 2003 
Ryan, born 2004 

Atrioventricular Septal Defect - AVSD

Benjamin, born 2005 
Emily, born 2003 
Mary-Grace, born 2012 
Naomi, born 2008 

Cardiomyopathy

Sara, born 2005 

Coarctation of the Aorta - COA (22)

Aiden, born 2009 
Arabella, born 2011 
Ashlynn, born 2011 
August, born 2015 
Braydon, born 2010 
Brianna, born 2000 
Brooke, born 2013 
Caden, born 2005 
Catherine, born 2009 
Delaney, born 2005 
Elias, born 2012  
Gabriel, born 2013  
Jacob, born 2001 
James, born 2011 
Layla, born 2011 
Louie, born 2009 
Nicholas, born 2002 
Noah, born 2010 
Olivia, born 2013 
Sarah, born 1980 
Stephen, born 2001 
Wyatt, born 2009 

Coronary Artery between PA and Aorta

Benjamin, born 2000 

Cor Triatriatum

Ben, born 2011 

Dextrocardia (7)

Asa, born 2008 
Carson, born 2008 
Jack, born 2008 
Kira, born 2002 
Maria, born 1985 
Olivia, born 2004 
Philip, born 2002 

Dilated Cardiomyopathy

Elise, born 2008 

Discontinuous Pulmonary Artery

Anjali, born 2008 

Double Chambered Right Ventricle - DCRV

Erin, born 1993 
Raychel, born 2001 

Double Inlet Left Ventricle - DILV (5)

Autumn, born 2008 
Charlie, born 2008 
Faith, born 2008 
Justin, born 2001 
Kimberly, born 1960 

Double Outlet Right Ventricle - DORV (18)

Addison, born 2008 
Aidyn Ann, born 2007 
Alessandra, born 2012  
Alicia, born 1992 
Ashlyn, born 2008 
Destiny, born 2004 
Dylan, born 2005 
Eden, born 2005 
John, born 1999 
John, born 2011 
Keegan, born 2000 
Kyle, born 2009 
Laura, born 1998 
Leo, born 1991 
Marin, born 2007 
Rebecca, born 2007 
Savannah, born 2005 
Shane, born 2012 

Ebstein's Anomaly

Ashlyn, born 2011 
James, born 2003 

Heart Block

Airin, born 2012  

Heart Transplant

Bilan, born 2010 
Lana, born 1995  
Miles, born 2013 

Hypoplastic Left Heart Syndrome - HLHS (87)

Alex, born 2011 
Andrew B - born 2004 
Andrew P - born 2004 
Annabel - born 2006 
Anthony, born 2011 
Ardelis, born 1982 
Asa, born 2008 
Aubrey - born 2004 
Ava, born 2008 
Ayden - born 2008 
Bella, born 2012  
Ben - born 1990 
Benjamin, born 2008 
Brady, born 2001 
Brayden, born 2010 
Breonna, born 2002  
Bridget - born 2000 
Chelliney, born 1995 
Collin - born 2004 
Cora - born 2005 
Cora - born 2009 
Daena - born 2001 
David - born 2006 
Dezo - born 2006 
Dylan - born 2004 
Dylan, born 2012  
Eloise - born 2006 
Emily - born 2005 
Ethan, born 2000 
Ethan, born 2011 
Eva - born 2007 
Evan, born 2007 
Gabriel - born 2004 
Hallie Grace, born 2014 
Hannah - born 2005 
Isabelle Faith, born 2012 
Jacob - born 1998 
Jayden, born 2010 
Jeffrey - born 1996 
Jessica - born 1987 
Joey - born 2005 
Joseph - born 2005 
Josh - born 1999 
Kailey - born 1995 
Kaitlynn, born 2003 
Kallie - born 2005 
Kellen - born 2010 
Kyle - born 1990 
Liam - born 2004 
Lily - born 2006 
Lindsay - born 2005 
Logan, born 2004 
Lucas, born 2005 
Lucas, born 2010 
Madi, born 2008 
Madison - 2000 
Maggie, born 2005 
Makenzie, born 2004 
Malayna, born 2005 
Matthew, born 1997 
Matthew, born 2007 
Megan, born 2004 
Michael, born 1998 
Nathan, born 2010 
Olivia, born 2005 
Parker, born 2010  
Peter, born 1988 
Renee, born 2002 
Robert, born 1997 
Ruby, born 2009 
Russell, born 2000 
Ryan, born 2003 
Samuel, born 2012 
Sarah, born 1990 
Sophia, born 2011 
Steven, born 1990 
Susannah, born 2004 
Syrius, born 2010  
Tara, born 1992 
Thomas, born 2009 
Timmy, born 2001 
Tristan, born 2009 
Tucker, born 2008 
Zachary, born 2001 
Zachary, born 2005 
Zachary, born 2009 
Zayden, born 2016 

Hypoplastic Left Heart Syndrome, Intact Atrial Septum

Bryce - born 2005 

Hypoplastic Left Heart Syndrome, TAPVR

Jacob - born 1999 

Interrupted Aortic Arch (IAA)

Brendan, Born 2006  
Clayton, born 2011 
Erin, born 1989 

Long QT Syndrome

Kathryn, born 1993 

L-TGA

Justin, born 2006 

Mitral Stenosis - MS (1)

Kelly, born 2007 

Non-compacted Cardiomyopathy

CJ, born 2008 

Omphalocele

Adriana, born 2005 

Partial Anomalous Pulmonary Vein Return - PAPVR (2)

CJ, born 2009 
Emily, born 2003 

Pulmonary Atresia - PA (8)

Aubrey, born 2006 
Dorian, born 2015 
Keegan, born 2012 
Marc, born 2012  
Nathan, born 2010 
Nicholas, born 1999 
Payton, born 2008 
Sophia, born 2007 

Pulmonary Atresia with IVS (8)

Christopher, born 2002 
Haven, born 2010 
Jonah, born 2011 
Joseph, born 2005 
Lucy, born 2016 
Maddie, born 2008 
Pietro, born 2004 
Sebastian, born 2001 

Pulmonary Stenosis - PS (5)

Devon, born 2007 
Kylie, born 2004 
Lee, born 1996 
Matthew, born 2004 
Missy, born 2002 

Shone's Syndrome

Declan, born 1999 
Kaitlyn, born 2011 
Mason, born 2010 
Owen, born 2008 
Wren, born 2006 

Tetralogy of Fallot - TOF (37)

Aamon, born 2004 
Addison, born 2005 
Alina, born 2013 
Bailey, born 2009 
Beckett, born 2013 
Christian, born 2007 
Christian, born 2008 
Dominic, born 2010 
Elena, born 2005 
Elliot, born 2007 
Emilyn, born 2003 
Emmanuelle, born 2003 
Gavin, born 2012 
Harlie, born 2005 
Harper Grace, born 2014 
Harrison, born 2004 
Hayley, born 2003  
James, born 1994 
James, born 2001 
Jaxon, born 2005 
John, born 2013 
Joshua, born 2004 
Julia, born 2005 
Julia, born 2008 
Juseylis, born 2010 
Kalila, born 2008 
Kaylen, born 2009 
Kyla, born 2004 
Kyle, born 2007  
Landon, born 2007 
Levi, born 2015 
Lily, born 2000 
Maggie, born 2012 
Meredith, born 2013 
Michael, born 2011  
Noah, born 2012 
Scarlett, born 2013 

Tetralogy of Fallot, PA (13)

Adriana, born 2005 
Andrew, born 2004 
Asher, born 2010 
Gabrielle, born 2008 
Isaiah, born 2012 
Janey, born 2004 
Logan, born 2007 
Matthew, born 2007 
Mikey, born 2014  
Nathan, born 2008 
Paislee, born 2016 
Penny, born 2007 
Tristan, born 2007 

Total Anomalous Pulmonary Venous Return - TAPVR (9)

Ben, born 2011 
Brianna, born 2006 
Conor, born 2000 
Davin, born 2009 
Grace, born 2005 
Jace, born 2014 
Jackson, born 2008 
Sam, born 2011 
Sophie, born 2009 

Transposition of the Great Arteries - TGA (32)

Aidenne Elise, born 2008 
Andres, born 2000 
Andrew, born 2002 
Andrew, born 2005 
Brooke, born 2013 
Caleb, born 2016 
Cheryl, born 1980 
Connor, born 1996  
Dale, born 2005 
Delaney, born 2007 
Dylan, born 2006 
Emma, born 2003 
Evan, born 2004 
Jafar, born 2007  
James, born 2010 
John, born 2000 
Joshua, born 2013  
Justin, born 2002 
Kaden, born 2007 
Kalvin, born 2005 
Killian, born 2009 
Luke, born 2008 
Melissa, born 2004 
Murphy, born 2004 
Mycah, born 2008 
Natalea-Jo, born 2004 
Nicholas, born 2008 
Pablo, born 1999 
Riley, born 2008 
Tony, born 2007 
Veronica, born 2009  
Zachary, born 2006 

Tricuspid Atresia (9)

Annabelle, born 2005 
Bill, born 1965 
Ewan, born 2004 
Hunter, born 2006 
Jackson, born 2014 
Kaden, born 2013 
Kylie, born 2009 
Merri, born 1973 
Sullivan, born 2007 
Will, born 1994 

Truncus Arteriosus (12)

Aoife Molly, born 2006 
Brandon, born 2013 
Brody, born 2006 
Cody, born 2009 
Corey, born 2002 
Ian, born 2004 
Kevin, born 1979 
Lauren, born 1983 
Mitchell, born 2006 
Nick, born 1990 
Talen, born 2011 
Tarynn, born 2009 

Vascular Ring

Erin, born 1993 

Ventricular Septal Defect - VSD (14)

Ava, born 2013 
Avery, born 2008 
David, born 2003 
Elizabeth, born 1995 
Erin, born 1993 
Everett, born 1933 
Giuliana, born 2000 
Isabelle, born 2007 
Jack, born 2011 
Lily, born 2014 
Makenna, born 2015  
Nathan, born 2006 
Raychel, born 2002 
Sadie, born 2016 

Ventricular Tachycardia

Josh, born 1999 

MEMORIALS

Alayna 
Alivia 
Amelia 
Avery 
Benjamin  
Caleb 
Caroline 
Christian  
Christiana 
Colin 
Cullen 
Drew  
Haeleigh 
Hannah 
Jack 
John  
Laynie 
Lennon  
Lily  
Madison  
Patrick  
Peyton 
Sam 
Sarah 
Sean 
Taryn  
Timothy 

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Have a baby that is newly diagnosed with a CHD? Read our stories of HOPE from other people just like you.

Little Hearts, Inc.

P.O. Box 171, Cromwell, CT 06416
Phone/Fax (860) 635.0006  Toll Free 866.435.Hope
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