Little Hearts

CJ, born 2009

My husband, Jeff, and I were so excited for the birth of our first child - a boy, in July, 2009. Colin James was born on July 29 via c-section. The night before we thought we would go home, the nurses came into our room and told us that CJ was put in the NICU because he had turned blue. This was just the beginning ... after a few more days in the NICU, they determined CJ only had about half of his right lung and they sent us to a pulmonary specialist about 30 minutes away before we could even go home. After weeks of testing, it was determined CJís problem was actually with his heart and not his lungs. Finally, at around three months old, he was diagnosed with Scimitar Syndrome or PAPVR.

We waited for CJ to grow big and strong enough for surgery, and in October of 2010 at 15 months old, CJ had open-heart surgery at Childrenís Hospital in Boston. While very scary for all of us, the surgery was a success, and we now have a healthy toddler running around our house. Heís not 100% "fixed," but the hard part is behind us.

Itís been quite a journey and he is our little miracle boy - thatís for sure. We treasure every day with him and thank God for all the doctors and nurses who have taken care of him. We canít wait to see what the future holds for our CJ!

Story by CJ's mom, Abby - ILLINOIS

Emily, born 2003
next »

Become a Member Arrow
  • No cost to join
  • Access to support services
  • Connect with other parents
Share your Stories of Hope Arrow

Have a baby that is newly diagnosed with a CHD? Read our stories of HOPE from other people just like you.

Little Hearts, Inc.

P.O. Box 171, Cromwell, CT 06416
Phone/Fax (860) 635.0006  Toll Free 866.435.Hope
SecurityMetrics for PCI Compliance, QSA, IDS, Penetration Testing, Forensics, and Vulnerability Assessment Web Solutions Connecticut CT Web Design & Development Company