Little Hearts

Bailey, born 2009

Bailey Jean was "Baby B" of a triple blessing this past April at 33 weeks and 6 days. When I was 30 weeks pregnant, we learned that Bailey had Tetralogy of Fallot. After two weeks in the NICU, Bailey was transferred to the PICU at U of MN Children's Hospital. She spent the next 2 1/2 -3 weeks battling "tet spells", bradycardia & tachycardia spells, low blood oxygen levels and receiving numerous blood transfusions. Finally, at 42 days old, Bailey underwent open-heart surgery to repair her heart. Thankfully, the surgery was successful! Bailey does have some other health issues, but none as serious as the heart. She does need some "touch up" work on the heart this fall/winter, but we know she'll do well. God and her Doctors do amazing work.

Like everyone else, this journey is very difficult. In fact, I often refer to it as "the emotional roller coaster from hell." While no two stories are the same, they are often filled with the same emotional ups and downs that come with the fear of losing a child. Just when things look like they are slowing down and getting better, a nasty sharp turn for the worse is right around the bend. I am happy to report that we are currently on the boring part of the ride... the small, easy baby hills with a few steep inclines insight.

At just 6 months old, Bailey spends her days playing, snuggling, rolling and bonding with her triplet sister and brother, in addition to her big brother.

Story by Bailey's mom, Bo - Minnesota

1/20/2013
Emilyn, born 2003
« previous
2/7/2013
Michael, born 2011
next »

 
Mask
Become a Member Arrow
  • No cost to join
  • Access to support services
  • Connect with other parents
Share your Stories of Hope Arrow

Have a baby that is newly diagnosed with a CHD? Read our stories of HOPE from other people just like you.

Little Hearts, Inc.

P.O. Box 171, Cromwell, CT 06416
Phone/Fax (860) 635.0006  Toll Free 866.435.Hope
SecurityMetrics for PCI Compliance, QSA, IDS, Penetration Testing, Forensics, and Vulnerability Assessment Web Solutions Connecticut CT Web Design & Development Company