Little Hearts


My beautiful baby boy, John Edward, was born on July 8, 2004. He was the first child for me and my husband. When I was five months pregnant, we were told that John would be born with Hypoplastic Left Heart Syndrome. The doctor had given us little hope and had suggested terminating the pregnancy. But we wanted to give our son a chance at life, so we researched and found our options. I learned more about the human heart in one month than I did from four years of High School! There are no Pediatric Cardiothoracic surgeons in Alaska so we had no other choice but to fly down to Portland, Oregon to await the birth of our son.

John was born at 8:50 am and weighed a whopping 9 lbs 3 oz! I truly had never felt such incredible love for anybody in my life. I was holding an angel in my arms. His Norwood procedure was performed when he was only 22 hours old. He struggled during the surgery, but pulled through. With very few setbacks, John seemed to fly through his recovery. When John was exactly four weeks old, we brought our miracle baby home. We enjoyed the time we had with John to the fullest. He never slept in a crib; always in our arms. We couldn't bear to put him down because we knew our time with him was precious.

Sweet John died on September 22, 2004. He was one week shy of three months old. I am so grateful for every single minute I had with John. I am thankful that God would bless me with such a wonderful little boy. I have been asked once by someone: "If you had known what you would have to go through and then have him die when he wasn't even three months old, would you have done it again?" As any mother of a heart child would say, YES! I would do it a heart beat.

To our dear Little Man, Mommy and Daddy love you very, very much. We will see you again someday. Until then, the angels will sing your lullabies and Jesus will rock you to sleep for us.

Story by John's mother, Celeste - Alaska

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Little Hearts, Inc.

P.O. Box 171, Cromwell, CT 06416
Phone/Fax (860) 635.0006  Toll Free 866.435.Hope
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