ChristianOur son was diagnosed with HLHS with an intact atrial septum at my 20 week ultrasound. We were given a 40% chance of our baby surving birth with this combination of heart defects. We spoke with the team at the Advanced Fetal Care Team in Boston and had an experimental in-utero surgery at Brigham & Women's during week 23. An atrial septum was created, which I believed allowed Christian to survive birth, June 21, 2005. He had two open heart surgeries and a series of catheterization procedures to try to help him along. He was truly a fighter and wanted to beat the odds.
Ultimately, Christian was diagnosed with pulmonary vein stenosis when he was three months old. Thanks to the wonderful and brilliant team of doctors and nurses at Boston Children's Hospital, we were given the opportunity to bring our son home. Although he was a very sick baby, he was able to spend his last days at home with his family. Christian died October 15, 2005.
We were truly blessed for our time and our journey in Boston. Special thanks to Dr. Tworetzky, Dr. Ravi-Thiagarajan, Dr. Locke, Dr. Marshall, Dr. Scheurer, Dr. Laussen and all his aunties and cardiac ICU nurses.
Story by Christian's mom - Trish - CONNECTICUT