Brianna, born 2000
Brianna was born with what we were told was an innocent heart murmur. We followed up with a pediatric cardiologist two weeks later to make sure it had resolved itself. It didn’t and she was diagnosed with Coarctation of the Aorta and Bicuspid Aortic Valve and was in critical condition. We were beyond scared and completely blindsided. She was admitted to the hospital for surgery and underwent her first surgery to repair her coarctation as she only had 20% blood flow to her lower body! At two months old, she underwent an angioplasty but due to the tearing of this valve, she was diagnosed with Aortic Stenosis.
Brianna has PC visits every six months. During a routine echocardiogram, a sub-aortic membrane was noted. This beautiful little girl has already been so brave and now yet we are blindsided again. Her cardiologist followed this mass closely and Brianna had a couple of angiograms.
Story by Brianna’s mom, Carol -
Aiden, born 2009
Caden, born 2005