Little Hearts

Amelia

My daughter was born October 9, 2007 with Complete Atrioventricular Canal Defect and was supposed to have just one repair surgery when she was six to nine months old but her health started to go down hill fast. When she was around 2 months old, she had her first surgery and they put a band around her artery. A week later, she was worse so they went in to do the complete repair. They repaired her heart defect and she was doing great but little did we know that was all about to change.

Two weeks after the surgery, her repair started to tear after she had a blood transfusion and she was in heart failure all over again. They went in yet again to see what they could do and found that her mitral valve had tore and couldn't be repaired so they had to put in a mechanical valve. They also put in a permanent pacemaker. She started to do very well and came home for three weeks and yet again started to do badly. I never thought I would hear these words but I was told "the only way to save Amelia is a heart transplant".

They transferred us to Little Rock Arkansas and the doctors there did one more surgery to see if they could fix her heart but it didn't work and on April 18th, 2008 they listed her on the national list for a heart.

Amelia came home for 18 months. She got to enjoy her siblings, and her Daddy and the at home life. She had the Biggest spirit and brought Joy to everyone who knew her. Her Courage and Will to live is something I will never forget.

Amelia passed away from unknown causes at this time unexpectedly on November 11, 2009. She had just had her heart cath a day before and was in my arms watching Little Mermaid when God called his Lil angel home. I have never asked Why, Why her, Why now after all she went through to be here. Instead I thank God for giving me the chance to hold her and tell her I loved her and was proud of her before she died. We were both in a peaceful place. I believe in my heart Amelia was tired of all the hospital stays, the needles, the tubes and if she wanted to have peace after two long years of fighting then who am I to deny her that? I miss her every minute of everyday and I have a huge hole in my heart but if I could change anything, I wouldn't! She was and still is a blessing in my life and has changed me as a person. If she hadn't gotten the heart transplant on May 31, 2008, I would have lost my daughter at eight months old.

Story by Amelia's mom, Cara - Louisiana

4/21/2011
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Little Hearts, Inc.

P.O. Box 171, Cromwell, CT 06416
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