LaynieWe were told at my 20 week appointment that they couldn't see all the chambers of the heart and that our baby might have a heart condition. They told us a couple weeks later that it could possibly be Hypoplastic Left Heart Syndrome, but we wouldn't know for sure until our little girl was born.
The next four months were very stressful and scary. I went to doctor two weeks before my due date and had a c-section and Laynie was born April 11, 2012. We didn't get to hold our baby and barely got to see her as she was taken right to the NICU. We were told that she did have HLHS and we were both devastated.
Laynie had her first surgery when she was two days old, it was very scary to see our little girl go through all that. She was starting to do better as they were taking her off her medications and finally took her off the ventilator and she was breathing on her own. We were so relieved and excited to be able to take her home as we had already been there for two weeks. It was Sunday morning and we were sitting in her room just like any other day, when all of a sudden Laynie stopped breathing. There was about 15 doctors that came in as we were waiting for over an hour to hear what was going on with our baby. The doctor finally came over and told us that our little Laynie wasn't going to make it as she had a blood clot in her shunt. Worst thing I have ever been through in my entire life.
Story by Laynie’s mom, Shelbi - Indiana