Peter, born 1988Hello, I am a 24 year old survivor of HLHS and I'm doing great! I have had the three stage surgery known as the Norwood Procedure. All three of my open heart surgeries were done at CHOP by Dr. William Norwood himself.
When I was born the surgeries had a very low survival rate and even if I did happen to make it through them all, the doctors predicted I wouldn't even live to go to school. Well through the gracious power of god, and a heap of luck too, not only am I surviving but I'm living and thriving! I have an almost completely normal life and absolutely no one would ever know I only have half a heart unless I told them!
So, I am here now and I am hoping to meet some of the other HLHS survivors around my age and to give support to anyone who may be going through what I have been though.
Story by Peter - Massachusetts
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