Robert, born 1997Robbie was three days old before we found out he had Hypoplastic Left Heart Syndrome. I was told I had three choices - let him die, transplant, or 3 staged surgeries. I choose the three surgeries.
After he had the Norwood, I was told he has less than 5% chance to live. He was put on life support. But he made it. After his second surgery his lungs were damaged and he coded but pulled through again. The last surgery went pretty well.
Just found out that he needs a pacemaker.
We have had an amazing journey and have a great outlook for the future.
Story by Robbie’s mom, Kathy - Florida
Bella, born 2012
Isabelle Faith, born 2012