![]() Jace, born 2014
Jace was then transferred to Phoenix Children’s Hospital where he had open heart surgery at three days old to fix his plumbing, as his team of doctors explained it to us. We sat there and cried until there were no more tears. We prayed that the surgeon would be able to fix our boy’s broken heart and we hoped that we would soon be leaving with a healthy baby. Surgery went well and Jace got stronger each day. His recovery was smooth and we were home in two weeks. That was the hardest two weeks of our lives. Not being able to hold your son and care for him as first time parents in those first weeks is something we will never get back. What we did learn during that two week stay was that the meaning behind Jace’s name was healing and that is exactly what he is to everyone who knows him! Fast forward one year later and Jace is now the happiest, silliest, most loving little boy. He has become quite the class clown and will do anything to make someone laugh. He has touched the hearts of all that know him and his journey has inspired us to live with intent. We treasure every moment and know that his outcome could have been much different if it weren't for that amazing nurse who acted on instinct to save our son's life. He has had regular check-ups with the cardiologist and each time gets a great report! He has minor scarring where the veins were attached to the heart and that will need to be monitored his entire life but we are now seeing his cardiologist once a year instead of every three months. I wanted to share his story so that other parents facing the same diagnosis can see that there is hope and so much love to look forward to! Story by Jace’s mom, Katie - Arizona
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