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Joey, 2005

Joey, born 2005

When I was 18 weeks pregnant with my second child, I went for a level two ultrasound.  I felt as though it was taking forever and just wanted to know if I was having a boy or a girl.  The perinatal specialist then told my husband and I that there was a serious problem with the baby's heart and she thought it was Hypoplastic Left Heart Syndrome.  We were referred to an area hospital that deals with HLHS and a visit with the Pediatric Cardiologist confirmed the diagnosis. I am pleased to say that no one ever encouraged us to terminate the pregnancy. 


Joey was carried to term and weighed 9 pounds, 8 ounces at birth.  He was born at a center of excellence for pediatric cardiologist and has received all of his treatment there.  Joey had his Norwood at six days of age and his bidirectional Glenn at six months of age. 


The first of his life was very stressful and difficult.  He struggled to eat and gain weight and had severe reflux.  Through prayer, persistence, and wonderful doctors he has come through these difficult times.  Joey is now on the chart for his weight. He was late to walk but is now right on track in all developmental areas. 


He is a beautiful boy and we thank God for him every day and is a blessing to all who know him.


Story by Joey's mom, Suzanne - Florida 

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